PRIVACY POLICY
National Parkinson’s Disease Registry, Pakistan
National Parkinson’s Disease Registry, Pakistan is a national registry for Parkinson’s patients. This study will enroll patients with diagnosis of stroke (ischemic and hemorrhagic). Purpose of this study is to identify risk factors, Parkinson’s types / sub types, presentation, care and outcome of these patients. Patients will be enrolled from more than 70 centers throughout country including AJ Kashmir. Target enrollment is 5000 per year over three years (2025-2028).
This study is endorsed by National Parkinson’s Disease Registry, Pakistan
This study is supported by: Health RAB, Pakistan
Ethical clearance of this study is approved by: Ethics review committee, Aga Khan University
National Bioethics Commission, Pakistan
CONSENT:
Physicians enrolling patients from clinic will take informed consent from participants.
CONFIDENTIALITY:
Only PI will have access to all data. Data will be kept confidential and will only be used for research.
COLLABORATION:
All collaborating centers will sign a collaboration agreement with PI
TRAINING AND CERTIFICATION OF PARTICIPATING CENTERS:
All participating centers/ investigators will be trained for operational definitions, data collection and research ethics including GCP (good clinical practice)